|Ph.D Student||Wolowelsky Yael|
|Subject||Genetic Counseling in an Arab Community; Families at High-|
Risk for Cystic Fibrosis as a Model of the
Influence of Genetic Counseling in this
|Department||Department of Medicine||Supervisors||Clinical Professor Zvi Borochowitz|
|Dr. Efrat Neter|
Cystic fibrosis is an incurable autosomal recessive disorder. Due to the high rate of consanguinity within the Israeli-Arab population, some communities may have high disease prevalence. The goals of the research were (1) to evaluate the knowledge, attitudes and intentions of an Arab population, regarding diagnostic tests for cystic fibrosis, and (2) to examine the effect of community genetic counseling on the knowledge, attitudes, and intentions of the target population.
Research groups included: a high-risk for cystic fibrosis intervention group which received community genetic counseling; a high-risk for cystic fibrosis control group and a general control group both of which were exposed to minimal intervention consisting of a leaflet in Arabic. The community intervention included: genetic counseling at community meetings in Arabic; a lecture by a prominent religious person on the Islamic attitude towards population screening tests; and a leaflet in Arabic. Knowledge, attitudes and testing intentions were evaluated by questionnaires given before, immediately after, and a year after the end of the intervention.